Wednesday, September 7, 2011

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Edda falls asleep in the most unlikely of places.

Edda's school year has started and it is always nice to see her enjoying her friends and teachers at school.  I just finished reading a memoir called Keeping Katherine.  The author has a daughter who has Rett Syndrome (who is now in her 30s) and I really enjoyed reading it.   Some of the feelings that she expresses are spot on with what I felt or what I feel - other very strong feelings that she had did not apply to me at all. I've known about this book for a long time, but I did not read it until now because I didn't not think I was ready yet. My own feelings about Edda and her disability are always such a jumble - acceptance, grief, hope, action and, of course, love - it's very difficult for me to put into words.

In the photo of Edda above, you will notice she's wearing a silver necklace.  It is the guanine base pair, the one that she is missing (806delG).  Guanine pairs with cytosine in the DNA strand - so I always wear my cytosine necklace.  

5 comments:

Erica said...

where did you find the necklaces? so cool!

sherah said...

I know I like that necklace too!

Doris said...

http://www.etsy.com/listing/62262788/friendship-necklace-set-dna-and-rna-base

Marta said...

Doris, I am so touched by your words. You inspire me and give me more hope than you'll ever know.

I was also deeply moved by the necklace you and Edda share. What a meaningful symbol.

Hugs to your family

Doris said...

hugs to you too Marta and little Caroline!